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Thread: Finally! Some good news about my daughter.

  1. #541
    Registered User rebake's Avatar
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    Better lose some weight and get new running shoes.That little princess is going to kick your butt,old man.I hope.....
    Ed Baker

  2. #542
    Registered User Rapid_Roy's Avatar
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    Quote Originally Posted by rebake View Post
    Better lose some weight and get new running shoes.That little princess is going to kick your butt,old man.I hope.....

    Lost some weight, better get the shoes. She also had a small seizure yesterday, but it wasn't a Gran Mal.The Neuro upped her new seizure meds, I hope that is the last we see of that.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  3. #543
    Registered User Rapid_Roy's Avatar
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    Needless to say, it wasn't the last one.


    We have been busy lately. Rachael is on a new med and one of the old ones. She had a seizure on Thanksgiving day, so I stayed home with her so my wife could go hang with the family. She seems to be right on the cusp with this med combo, which kind of has us walking on eggshells.

    We have been in contact with Realm of Caring, they make a Hemp oil which seems to reduce seizures in 85% of the people it was given to. It has little to no THC, the High content Cannibinoids are what works on the seizures. However, it was only recently reclassified as a supplement, and they can't ship it and it is in a gray area for transporting over state lines as well. You could drink gallons of it all day and not feel anything like a buzz. It may be up to a year before they can get anything changed, and the Police are prosecuting parents who go and get it and bring it home to their children for Child Endangerment. It has just happened to a lady in MN, and it becomes legal there January 1st. In essence, the state is saying the child having seizures is fine, a Mother trying to stop them is endangering the child.

    I feel the world is slowly going insane.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  4. #544
    not so retired henzilla's Avatar
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    Another hurdle...hope reality and science catches up with old school fears. Dang sure doesn't make sense at times.

    Wishing you the best with Rachael.
    Steve Henson
    SABMWRA MOA Club#62's Flat Fixer/ current forum moderator
    It's not the breaths you take, but the moments that take your breath away-D.Dillon/G. Strait

  5. #545
    Douglas Williams
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    Quote Originally Posted by henzilla View Post
    Another hurdle...hope reality and science catches up with old school fears. Dang sure doesn't make sense at times.

    Wishing you the best with Rachael.
    ...or the other way around. Also, the best for all of you.
    Doug
    Sent from a Galaxy, far, far away

  6. #546
    not so retired henzilla's Avatar
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    Quote Originally Posted by 83014 View Post
    ...or the other way around. Also, the best for all of you.
    Doug
    I sure had that backwards didn't I I def meant it the other way
    Steve Henson
    SABMWRA MOA Club#62's Flat Fixer/ current forum moderator
    It's not the breaths you take, but the moments that take your breath away-D.Dillon/G. Strait

  7. #547
    Survivor akbeemer's Avatar
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    All the best for Rachael and your family Roy.

    Steve gets a pass on his getting things backwards, he's still lightheaded from sniffing gasoline fumes while transferring fuel between bikes.
    Kevin Huddy
    Tm Pterodactyl MT Outpost

  8. #548
    Registered User Rapid_Roy's Avatar
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    Thanks all. On the plus side, I have my 30 years in as of November 11th, and aToy hauler and retirement could be in the works in 2 years, once my boy is out of College. We figure if we have to care for our daughter well into the forseeable future, it's going to be someplace pretty. We also hope to hit more rallies. Tryin' to make lemonade here!
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  9. #549
    Chromehead bobs98's Avatar
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    Best to you and your family, Roy. Continued prayers for Rachael.

    Hope to see you when our Toy Haulers cross paths. Or sooner would be better.
    Bob Smith
    '98 R1200C
    '80 XS850 Special
    '05 Rocket III

  10. #550
    sMiling Voni's Avatar
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    We could all learn so much about your positivity!

    Thank you for being you and sharing your heart.

    Voni
    http://www.bigbend.net/users/glaves/
    Live fully. Laugh deeply. Love widely.
    BMW MOA Ambassador / FOM / Roving Forum Moderator/
    Selected Friends of Wile E Coyote/ A Million BMW sMiles

  11. #551
    Smaug Cometh! AirBender's Avatar
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    So many of us take our healthy children for granted. Your journey with your Daughter is a test....and one you and your family are doing the best you can. Hang in there sir!
    "Are you living life the way you were meant to, or how you have been led to think you are supposed to?"
    1989 Yamaha FZR 400 Racebike (r.i.p.), 2009 Suzuki Hayabusa (sold), 1983 custom naked Honda Goldwing, 2015 BMW R1200RT (on order)

  12. #552
    Registered User Rapid_Roy's Avatar
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    Quote Originally Posted by bobs98 View Post
    Best to you and your family, Roy. Continued prayers for Rachael.

    Hope to see you when our Toy Haulers cross paths. Or sooner would be better.
    Thank you very much and yes to that last part.
    I am working on my wife for the BMWMOA National this year. Are you going to go?

    Quote Originally Posted by Voni View Post
    We could all learn so much about your positivity!

    Thank you for being you and sharing your heart.

    Voni
    Thank you Voni, I can't help that it's on my sleeve. This is why I do not play poker.
    :
    P.S I saw you at St Paul, but you were very busy, so I didn't interrupt.

    Quote Originally Posted by AirBender View Post
    So many of us take our healthy children for granted. Your journey with your Daughter is a test....and one you and your family are doing the best you can. Hang in there sir!
    Dang, I feel like I didn't study for this test, and I am the only one who showed up naked.
    Thank you, everybody have a great day.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  13. #553
    Chromehead bobs98's Avatar
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    Not this year

    Billings? Unfortunately no. But hopefully next year in the East Zone.
    Bob Smith
    '98 R1200C
    '80 XS850 Special
    '05 Rocket III

  14. #554
    Registered User Rapid_Roy's Avatar
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    Quote Originally Posted by bobs98 View Post
    Billings? Unfortunately no. But hopefully next year in the East Zone.
    Hmm. I will be in Hampton, TN in Spring, but that is as close as I will get to the East Coast this year.
    Tentatively in for next year, and I am not sure if I will make Billings either.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  15. #555
    Registered User rebake's Avatar
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    Peoria in January is nice,you should come down.
    Ed Baker

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